Ava Clarke. A criança albina que arrasa no mundo da moda

Ava Clarke. A criança albina que arrasa no mundo da moda


Ava Clarke tem oito anos.


Ava Clarke tem oito anos. É filha de pais afro-americanos, mas nasceu com um tom de pele branca, cabelos louros e olhos verdes. A beleza de Ava cativou milhares de pessoas e já se tornou uma criança-modelo no Instagram. Só que a beleza da pequena Ava é produto de uma doença genética. O albinismo.

Apenas com dois meses de idade, Ava foi diagnosticada com a doença genética que impede a pigmentação da pele, olhos e cabelo.

Os médicos alertaram os pais para a possibilidade da filha ficar cega o que obriga a criança a ter um acompanhamento medico diário e rigoroso. 

Fora das consultas médicas, Ava Clarke segue o seu sonho de modelo e faz furor nas redes sociais.

O conhecido designer de moda, Karl Lagerfeld já dizia: "não gosto da beleza convencional, nenhuma beleza sem estranheza".

 

ALBINISM AWARENESS DAY Albinism is an inherited genetic condition that determines the amount of melanin pigment formed in the skin, hair and/or eyes. Albinism occurs in all racial and ethnic groups throughout the world. In the U.S., approximately one in 18,000 to 20,000 people have some type of albinism. In other parts of the world, the occurrence can be as high as one in 3,000. Most children with albinism are born to parents who have normal hair and eye color for their ethnic backgrounds. There are different types of albinism. The amount of pigment in the eyes, hair and skin varies with each person. A common myth is that people with albinism have red eyes. Most people with albinism have blue eyes, hazel eyes or brown eyes. Lighting conditions can allow the blood vessels at the back of the eye to be seen, which can make the eyes look reddish or violet, but it's only the lights reflection on the blood vessels. People with albinism are affected by photophobia (look it up) and vision problems. #lessonfortheday #avaclarke #iamwhoiam #albinism #raiseawareness #albinismawareness #internationalalbinismawarenessday #albinismisbeautiful #inmyskiniwin @jaytayphotography

Uma foto publicada por AVA CLARKE (@theavaclarkedotcom) a

 

RED EYE MYTH ■ Photophobia There are 2 reasons the flash on my camera is always off. 1) The close light is uncomfortable to Ava's eyes. 2) The direct light makes Ava's eyes look red and I have to use the red-eye reduction feature to fix photos. FYI: My eyes are also red in pictures when the flash is on. 🙈 A common myth is that people with albinism have red eyes. They do not. Most people with albinism have blue eyes, hazel eyes or brown eyes. Lighting conditions can allow the blood vessels at the back of the eye to be seen. This lighting can make the eyes look reddish or violet, but it's only the lights reflection on the blood vessels.There are different types of albinism. The amount of pigment in the eyes, hair and skin varies with each person. 📷💡🙈 #lessonfortheday #redeye #photophobia #avaclarke #iamwhoiam #albinism #raiseawareness #albinismawareness #albinism #albinismisbeautiful #inmyskiniwin #beyondmyskin

Uma foto publicada por AVA CLARKE (@theavaclarkedotcom) a